Ultrasound normal

Teryn had another infection at her gtube site. Her nurse and I were very suspicious Monday when we noticed a smell and discharge again. The culture came back positive for staph. Yup....this is the same one she has already been treated for once. Somehow it came back. She has begun another round of antibiotics. Good news is that they are using a different one now that does not have to be given through IV.

She is IV free right now since she was able to resume full feeds again. This is especially great since her IV was having to be replaced everyday and they were running out of veins to use.

I pressed the issue about getting an ultrasound of her pylorus this morning during rounds. They agreed and put in the order. As we were doing her touch time (changing diaper, temp, measurements, assessments) we heard a gurgle sound and she had a very large amount of mucus and saliva looking liquid come out of her mouth forcefully. She did this twice. Her nurse said that she believed it was her vomiting. Since her food does not go to her belly, she just vomited what was in there. We cleaned her up and watched her closely for a while. So far it hasn't happened again today thank goodness. Good news is that she really seemed to feel better and be less fussy afterwards.

The ultrasound tech came in during all of the commotion and was sweet enough to wait until we got Teryn clean and settled. She was having a very hard time getting clear pictures of what she needed because the gtube was in the way. She went ahead and took the pictures to the radiologist but they were inconclusive. Therefore, we had to stop her feeds for an hour and then try again. The second time was a little better. We received the results and everything there is normal. YAY! this is great news because that means we have avoided a surgery. Now we still don;t know why she cannot tolerate food in her stomach if she is not refluxing. (so the tests say.) Yeah, not sure if I have posted this yet, but we have now had 2 reflux tests come back saying there isn't any.

Her physical therapist said he was pleased with how she is doing. She even showed off how well she can hold her head up for tummy time.

So, now we are still waiting to hopefully get the gtube advanced. They will monitor her for a couple days after this is done and make sure she is tolerating her feeds this way. As long as there aren't any other issues coming up at that time then we can start talking about discharge plans. This is going to be a challenge itself. Chances are insurance will not pay for her to be transported home unless she is on oxygen. We are quite apprehensive about taking her for a car trip that will take 9 hours not including stops. This is challenge enough for any baby, but we are especially anxious considering she has never been away from the hospital yet. We have a couple options to consider and things to try to work out. We are definitely ready for that challenge if it means we get to come home.