The surgeons came in today and said they will do the procedure to have Teryn's tube advanced!!!! Praise the Lord. Regular jtubes are too large so they will be going with the method we had tried before which is having a thinner tube threaded through her current gtube to make a g/j tube. They will do it under general anesthesia. It will be sometime this week. There are a few risks involved such as the procedure possibly undoing her fundoplication that she had done, there is the risk from the anesthesia, and they will have to put air in her stomach which may cause it to be distended for a couple of days. I know God has Teryn under his protection so please continue to pray that He will guide the surgeons hands and the procedure will go beautifully.
One of my concerns was what could we do if the tube came out down the road when we get home. I explained where we were from and that we only have one surgeon who will do these types of procedures. This is the same surgeon who did Teryn's original procedure. The MCH surgeon knew him by name and spoke highly regarded remarks (as several people her have) about him. Go Doctor Taylor! He said that if his own child needed a surgery he would have no worries about Dr. Taylor doing it. So, that makes me feel better that if the tube comes out (which they sometimes do) then hopefully we will not need to travel to have a new one put in. I was also glad to know that Teryn may begin to eat as soon as she comes out of anesthesia as long as there isn't a lot of air distending her belly.
I spoke with the doctors during rounds this morning about Teryn having to remain on IV fluids until the procedure. It is so difficult to get a line in her and they do not last very long. The IV nurse yesterday said she was using the last possible one she saw. Teryn has extremely tiny veins like her mommy. So...the doctors have agreed to attempt to put the ND tube back in temporarily so she can eat. They will do it under a special type of xray so they can get it back in the correct place. The radiologist couldn't get it in on Thursday, but the method they are going to use today has worked for her in the past.
Thank you so much to everyone has has been fasting and praying with us. During my prayer time I have also been praying for each of you. I have prayed that God will also bless you. I am so touched at things I am hearing about how God has blessed so many of you through Teryn's struggle. God is so amazing and faithful. I have seen several people grow closer to Him and grow in their own faith all because of Teryn.
Last night one of my dearest and certainly 'oldest' friends sent me something wonderful. (I say oldest because we have been friends for 18 years now even though we only lived in the same state for 3 of those years.) She put a link of a song on my FB page. I believe I have heard it maybe one other time but only remembered it very vaguely. As I listened to the words I felt God speaking them directly to me. It was such a perfect message at an even more perfect time. I began to weep (in joy) and thank God for what an awesome God he is and how He has so many wonderful things planned for us and Teryn. Every word spoke to my heart but I believe the words that stuck the most were: "The pain that you've been feeling can't compare to the joy that's coming." I think it is going to be my motto!
Listen and be blessed:
After I listened to the song I began looking at some of the videos around it and saw one titled: "The story behind Before the Morning"
Yet another way God has confirmed His promise to us....look at how good my God is...this song was written by Josh Wilson for 2 friends of his whose son was born with several problems. This song was about a family going through a struggle so similar to ours. Can you believe it? I immediately texted my dear friend to ask her if she knew the story behind the song. She did not but God did.
If you want to be blessed right now, watch this story:
I have said so many times that God has such an amazing plan for Teryn's life, this was just another confirmation.
Thank you for your prayers and keep them coming. I pray that you will continue to be blessed by our Lord and Savior as you do.
That's great news! I hope all goes well and she comes home soon! I fasted and prayed for you this weekend! Let me know what I can pray for :)
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