Seizure?

Yesterday James and I left around lunch time so that we could eat and he could get on the road. When I returned to the hospital a few hours later things were not as they had been when I left. As I walked over to Teryn's bed I saw that she had the probes all over her head again, she was hooked up to the video EEG, and she had a new IV started. I looked at her nurse and asked why they were doing another EEG because the other one had been fine. She said, "The residents didn't call you?" Uh, no. What in the world was going on?

Here is what happened...about 15 minutes after we left Teryn got very fussy. Her nurse was rocking her to sleep and then her alarms started sounding. She looked at her and she had turned blue, her breathing had stopped and her heart rate was decreasing. She placed her in her bed and tried stimulating her which usually works. She was not responding to the stimulation so they had to bag her (oxygen). She had to have this done twice and on one of the occasions for a duration of 2 minutes. The resident came in and said he believed she was at the end of a seizure.

They immediately ordered to have another video EEG done. Her feeds were stopped in case they needed to give her a breathing tube, and labs were done of urine, blood, and cultures. They did chest xrays and everything was fine there. They also hooked her up to a nasal cannula which is a tube that slips into her nostrils to keep oxygen flowing in case she stops breathing. Because they stopped the feedings, they had to start her on another IV for her nutrition.

She was alert and happy when I saw her. As soon as she heard my voice she began cooing away to tell me what had happened. I called back around 11pm and she had been very fussy all evening since I left. She was hungry and uncomfortable because she had to be on her back with no clothes, no blankets. She sleeps so much better on her tummy.

So this morning I found out that she had a couple of apnic episodes throughout the night that needed stimulation but no bagging. When the VEEG was done this am I asked if she could be placed on her tummy. As soon as she was placed on her belly she fell asleep.

The doctors came in for rounds and as of right now there are no results from anything. The VEEG results should be back by this afternoon. They are going to keep her off of feeds until tomorrow so that her body can readjust. The surgeons decided that she is not a candidate for a revision of her fundo so for feeding our only other option is to have her gtube advanced which means she will definitely be on continuous feeds through her feeding pump when we go home. The advancement of the gtube could have been done this Wednesday or Thursday but because of the infection they are going to wait until that is resolved.

More waiting games and more questions without answers.