On Friday we found out that Teryn's gtube site has 2 bacterial infections. She was immediately started on 2 different IV antibiotics. She had just had her central IV line removed wince we didnt think she needed it anymore. So she had to have another one placed in her foot.
We found out today that both bacteria were sensitive to one of the antibiotics so she was able to come off of one of them. The gtube site continues to have a lot of discharge and will need to be cleaned ane monitored frequently.
The surgeon came by today for a consult. We are trying to see which of 2 options is going to be best for feeding purposes. Here are the options"
1) Advance the original gtube to make it a jtube. This will allow us to feed her through her gtube and bypass her stomach therefore reducing reflux. There is no recovery time from this which is a plus. However, the tube can sometimes come out and it is a temporary fix. Also with this option she will have to remain on 24 hour continuous feeds.
2)Have surgery to revise the original fundoplication. On the con side, it is surgery. There is no gaurantee it will work but it would allow us to feed her through her original gtube every 3 hours. These bolus feeds instead of continuous would provide more freedom instead of being stuck to the pump 24 hours a day.
James had to go back home today. So sad to see him leave.
Praying that God will help everyone to make the best decisions for Teryn.
Hello Family and Friends. The purpose of Teryn's page is two-fold. First, to keep all of you informed with our progress. Secondly as an outlet for all of the emotions, the great ones and the tough ones. Some entries may have more details than you were looking for...sorry...those are there for me. I believe that you are going to see why every struggle in this experience is worth it as you fall in love with our little girl as we have.
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