Sunday, July 25, 2010

Home again

We are finally home again after a week stay in the hospital. We arrived last Saturday night around 9 pm and were discharged this Saturday night around 9 pm. Teryn has been feeling much better. Here is a picture of her smiling at Elmo yesterday:

We kept watching her oxygen saturation and it was doing very crazy things. For example the alarm would go off and it would say 65 (very low) but she would look okay and then it would immediately jump 10 points and then another 10. I have seen her when she truly stops breathing and her O2 goes low and it takes her much longer to recover. The nurse was great and very observant of what was going on. We were both concerned that we were treating the technology and not Teryn. One of her respiratory therapists from the NICU came over to do a treatment and decided to just leave the nasal cannula off. Her sats stayed in the exact same pattern as when she was on the cannula. Of course a lot with Teryn is positioning. For example, we know she needs to sleep on her belly for optimal breathing. Her pediatrician came in and was very happy with the way she looked and sounded. I could tell she was definitely getting back to herself again. She is soooooo happy to be home. It is absolutely amazing the difference in her temperament when she is home. It is like she is saying, "Oh thank you. I couldn't wait to get back here."
On a funny note I scared the pants off of the nurses yesterday. Teryn and I were in a private room with the crib for her and a bed for me. There was a curtain in the middle that I would pull across the room when I had to pump. Well, her nurse was telling me that they were getting a little low on her milk so I decided to go ahead and pump. After I was done I was holding the bottles in one hand and was closing the curtain with the other. I was trying to push it all the way against the wall and out of the way of her food pump and nebulizer. I then began walking toward the table to store her milk and all of a sudden several nurses came barging in the room. Teryn's nurse was first and saw me standing there with the milk and said "Oh, yeah, we are good." Confused I said, "yeah we have milk now." I was a little confused why so many nurses would be worried about not having milk. Well apparently when I was pushing the curtain back I pushed the emergency call button on the wall. (Not the regular nurse call but the emergency call.) I felt like such a dummy but it was still pretty funny having a bunch of nurses running in and then me standing in the middle of the room confused with my hands full of breast milk.
When we got home we were so excited about finally getting a good night sleep. Well that only lasted about an hour before the power went out!!!! It is waaaaayyyy too hot here to not have power. No AC and not even the option of a fan. The power was not restored until 10am. There wasn't a storm or anything but the power crews were working a few houses down all night. So needless to say I did not sleep between being hot and also worried about Teryn's equipment having enough battery life left since we hadn't been home charging it in a week. Thankfully the house is nice and cool now so we all took a long nap this afternoon.
It is great to be home. Now it is time to get in gear for preparing for the upcoming school year. So little time and so much to do. Teryn will be going up to my classroom with me a couple days this week and then we have 2 out of town doctors visits to see Neurology and Gastroenterology. Will let you all know how it goes.

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