Getting food but now a new problem

We originally had a scheduled time of 10:00 to go down to radiology but as is the nature of hospitals we got pushed back to 11 and finally got to go down at 11:30. We stood around for about another half hour because there was some confusion and everyone thought someone else had the correct tube. The radiologist went ahead and decided to take a look. He injected contrast and what we found out was that there wasn't a break in her tube but rather it had worked its ways almost completely out and was hanging around in the external portion of her gtube. They sent us back upstairs and began the search for a tube that would work.

The nurse got on the phone with Miami Children's to have Teryn's records faxed over and try to find the correct tube info to have a new one overnighted. Meanwhile the surgeon came in with a tube in hand that he found in ICU. He took the old one out right at her bedside and began trying to work the new one in. Xray came up and the tube was coiled in her stomach. The surgeon took it out and pushed it back in again. This time the xray showed that it may be in place. So, we have begun trial feeds at about 1/3 her usual amount and will increase as she tolerates it through the night. Looks like we will be holding off on surgery for a little bit, especially since the surgeon is about to go out of town and be away for a while.

Throughout the day I was noticing that Teryn's breathing was quite a bit more labored and that she sounded like she was wheezing. She always sounds rattly from her secretions but this was different. We put her back on the 02 monitor and her sats were lower than we would like. She was taking breaths just fine but was having a hard time pulling in the air. She has also been trying desperately to cough up congestion in her chest but isn't quite sure how. So......long story short....she is on a nasal cannula to push humidified oxygen through and will be receiving breathing treatments every 3-4 hours until the wheezing stops. Her pediatrician has ordered a chest x ray to make sure her lungs are okay and she hasn't aspirated. So, we think we have the feeding issue mostly resolved but now we have a new challenge.

In addition, my mom was up visiting today and wasn't feeling very well. I knew there was something she wasn't telling me. She spoke to Teryn's nurse outside and the burse talked her into going downstairs just to have them hook her up to the machines and check her out. They decided to admit her and run some tests because of her recent heart attack. They wanted to put her in ICU but she refused so they have her in a room on the floor above us. I suppose at least now the family doesn't have far to go to visit.