Teryn has been awake allllll day. frustrating because she is so tired and hungry and wants to rest. The good thing is that maybe she will sleep through the night and get her days and nights back in check.
She is continuing to be on IV fluids and the IV from yesterday is still holding. Praise the Lord!!! The IV nurse came in to try and put in the central IV line that would last and hold better but could not find any veins in her arms, hands, legs, or feet that would hold it. So many of her veins have been used for past IVs. The last one she saw was in Teryn's head. I was walking into the room when I heard her say she was going to get the shaver. She saw me and was explaining that she had no luck with the other veins and showed me the one in her head. Teryn has had IVs in her head before but not a central line and not one where she needed to have part of her head shaved. I just couldn't give my okay for it. I asked the IV nurse if she saw any other veins that could possibly hold a peripheral IV if needed. She said she saw a couple of possibilities. She and I made a deal. She will be here tomorrow, so we will stay with the line in her foot that she has now. If the line goes bad and there is no success putting another peripheral line in, then I will consent to the central line through her scalp. She and I agreed that it seems like overkill to put a central line in her head when she will hopefully only need it for a couple days.
We didn't get to do occupational therapy today because little missy was very grumpy and quickly let us know she just wanted to rest today. I am STILL waiting on speech to come in and do a consult about her swallowing. I know the order was written but have not seen the therapist yet. Hopefully soon.
For some reason this week the homesickness has really set in. Of course I am terribly missing my family, friends, and puppy dog but now I am missing so many of the small things. I want to drive down 23rd street traffic and go to Cahall's for a chicken salad sandwich and broccoli salad and REAL sweet tea. I want to drive down my road and have to stop and wait on the ducks. I want to be able to go to a Bookstore and pick up a book quickly without having to pay a fortune to park in a garage and then walk several blocks. I want to stop living out of a suitcase and sleep in my own bed next to my wonderful husband (and of course Xavier at my feet.) There are many many other things that I think of on a daily basis.
***Okay, I had to stop typing for a couple hours to hold Teryn and try to get her back to sleep. I was just putting her in her bed and asking the night nurse to check other options if her IV went bad before they did the central line and as I was speaking to her the IV alarms started sounding. The IV line has gone bad. Uggghhh. The nurse is out to see of someone can get a line into her hand or leg. Please pray they get something so she doesn't have to get the line in her head and also so she can get her nutrients. I have also asked that if they can't get the line in to please check the placement of her ND tube again just in case in finally moved to the correct position.
Instead of leaving like I planned, looks like I will be hanging around here even longer to see what happens.
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