Good theory?

Teryn had a great day today. When I got here this morning the nurse said she had one desat when she was changing her diaper. However, she also said that she had a lot of saliva in her mouth that she was choking on. Once she suctioned her she was fine. Throughout the rest of the day she only had one other desat. We had to wake her to do her assessment and change her diaper. As soon as we rolled her on her back she wanted to fall back asleep. She was too relaxed and her tongue rolled back to block her airway. A gentle little nudge and she fixed it.

So....maybe my theory was right that the anti-seizure meds are going to help with her central apnea. The plan is still to modify the gtube next week. Eventually they will wean her off of the caffeine. If she can control the apnea after that then we will be doing great.

Feeling very optimistic. I spoke at length with her nurse today who was visiting from another unit. She usually works with children who have much more severe issues. She was very optimistic about Teryn's diagnosis and agrees with me that Teryn shouldn't need any surgeries for her breathing.

Finally leaving the hospital to get something to eat now that it is almost 9:00. Goodnight everyone.