Teryn had surgery yesterday with the ENT. I was pretty surprised they did it yesterday being a Sunday. Our experience up until now is that most everything stops on the weekend. The pediatric team decided it would be in Teryns best interest to go ahead and remove her tonsils and adenoids since it will cause airway issues for her again if they become swollen. The doctor removed her tonsils and 75% of her adenoids. Only 75% in order to preserve her palate repair that was done this summer. The doctor and I discussed her PE tubes in her ears and decided to go and replace them since they were getting very clogged. This will save her a future surgery with ENT at home.
After the surgery was completed it was a while before they let us join her in recovery. She was having some breathing issues because of all the congestion from her pneumonia. Instead of returning to her room they moved her to ICU to recover. She was doing very well so we only had to stay there a few hours before they let us go back to our regular room. She was in some discomfort and had a low grade fever last night and this morning but the loritab has helped with that. (still seems crazy to give a toddler medicine like that)
Last night she did have several desats ( desaturation of oxygen) but they always came right before a big cough, she had mucus so thick that it wouldn't even fit through the suction catheter.
I also asked the team to look at her gtube site because she has been having some very dark drainage. Surgery team came over and decided it was most likely bleeding from some granulation tissue on the inside of her tube tract. They came by and burned some of it off and so far so good. Hopefully this will keep her skin from being so irritated and the skin breaking down.
She has been up playing and being very silly today. She has been using her bed as a gym. She has been practicing pushing up on her belly with full extension of her arms, she is getting so good at it and so strong, I think her motivation has been to spy on us over her bed rails to make sure more doctors aren't coming in. Now all she has to do is realize she has to push up and pull her knees under at the same time and she will be reedy to crawl. I am ready for the chase!!!!
Hello Family and Friends. The purpose of Teryn's page is two-fold. First, to keep all of you informed with our progress. Secondly as an outlet for all of the emotions, the great ones and the tough ones. Some entries may have more details than you were looking for...sorry...those are there for me. I believe that you are going to see why every struggle in this experience is worth it as you fall in love with our little girl as we have.
Poor girl! I hope she gets feeling better soon!
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