Camping, Doctors' Appointments, and EEG

I am going to do a little catching up on this post. It has been a while since I have had the chance to come on here. It has been so busy lately since getting out of the hospital. I have been diligently trying to get my classroom together as well as heading out to MANY appointments for Teryn.

Last week we had an appointment with the neurologist on Wednesday and the gastroenterologist on Thursday. The first appt was 2 hours away and the second was 3 hours away. My mom and Dad just happened to be camping in the area so James went to the appt on Wed then Teryn and I stayed and gma and gdaddy took us to the appt on Thursday. Unfortunately James had to head back and go to work. Teryn and I ended up staying for 3 days. She did so great. The second night she was exhausted. We gave her a bath and layed her in her bed and she went straight to sleep and slept her full 12 hours without a peep.

Here are the updates fromt he appts:

Neurology: The dr is going to keep her on her current seizure med for a while but said he won't keep her on it for many more months since it has been shown to possibly impair development. This was news to me. Also kind of frustrating since we are already working so hard to help her make good progress with her development. He ordered an EEG with light stimulation so we can see if this truly is one of her triggers. I am really praying that it isn't. Currently we are avoiding her facing the TV because of flashes, cameras with flash, toys with flashing lights, the sun flickering in the car windows, and anything else that flashes. It will be great to not have to be so careful about avoiding such things.

Gastroenterology: The dr thinks we are right on track with the current plan and tests we have in the works with our surgeon. We will go back to him in 3 months to monitor how things have progressed.

Here are some pictures from our camping time:

Teryn taking her bath in the camper sink.

Mom and I were cracking up because Teryn kept propping her feet up. She was enjoying her little spa time.

We were wondering how we were going to fit Teryn's bed in the camper without it being in the way. Grandaddy displayed his excellent craftsman skills once again and came up with a perfect solution. He was able to take out a portion of one of the bed areas and created a cubby that was the PERFECT size for Teryn's travel bed. Here is a view with my bed on the left and Teryn's on the right.

My bed.

Teryn's bed.

Teryn has been getting so much better with her head control. I decided to let her try her Bumbo seat without any supports and she did awesome.

Here she is making what grandma calls her "Elvis look." heehee

I guess all the work of holding up her head wore her out and she fell asleep.

We got up VERY early this morning and hit the road at 5am in order to be on time for her EEG at 8am. Here is Teryn getting all of her electrodes put on. She was very patient and didn't get fussy until the tech was almost finished.

Looks like colorful dreadlocks.

Losing patience and getting fussy.

Finally, her mummified finishing touches.

When it was time to begin the study she was pooped and went right to sleep and slept for almost the entire time.

Here she is once we got home. She had quite the mohawk hairdo from all of the gummy glue.

We should have results from the EEG in a few days.